UK CLL Forum, UKCLLFORUM

Welcome to the UK Chronic Lymphocytic Leukaemia Forum (UKCLLForum)

Welcome to the UK's only specific forum for the patients, families, friends and carers of those diagnosed with Chronic Lymphocytic Leukaemia (CLL).

About This Forum
The UK Chronic Lymphocytic Leukaemia Forum (UKCLLForum) has been created specifically for the patients, families, friends and carers of those diagnosed with CLL within the United Kingdom. We recognise the specific needs and wishes of these members and have designed this website to satisfy this criterion. We also appreciate that because this medical condition affects those generally over 55 years old, there may be a reluctance to use such a resource as this, and in addition, the British culture is a little more reserved than other countries. We would therefore strongly urge you to overcome these obstacles and subscribe to this forum.

Forums Structure
The forum is simple to use, utilising a fairly formal structure to enable new members to look through previous topics on specific subjects. For instance all posts relating to Shingles will be found in a thread specifically named Shingles.

We have even included an Off-Topic Board for those that would like to use this facility.

It is also easy to create a new topic by simply selecting the 'New Topic' icon.

Login
We have had to include a login facility to prevent unauthorised use by spammers or people trying to sell specific products. We all know that this can be a little inconvenient, but I would assure you that we have kept the required details to an absolute minimum. We will therefore only ask you for:

  • A username.
  • Your First and Second name, but there is no reason why these can't be the same as your username or even an alias.
  • Your sex.
  • Your email address. This is necessary so that we can mange the forum and prevent inappropriate use and provided details of threads posted to the forum.

Confidentiality
Please be assured that we will not under any circumstances publish your details or share them with any other party. We want the members that use this forum to feel fully protected and we have taken preventative measures to ensure this.

Advertising
There are no advertising banners or other forms of advertising whatsoever on this forum.

Finally, it will take time for this forum to establish itself within the UK CLL community, we therefore ask for your continued support in any way that you can.

Latest post on the UK Chronic Lymphocytic Leukaemia Forum.

View the most recent 20 posts.


Replied On: Jun 22, 2009 07:53pm
mandy j

Offline
Gender: Female
Posts: 11
Hi Robert, yes you were right about the c4 c8 test it shows the immune markers on the white cells, and mine were a count of 140 should be at least 200 so immune system is still low! Have my next dose of sandoglobulin thursday, that gives immune system a boost, still get quite bad bruising, doc will not say how long remmission, I understand from some people on here that they don't seem to get long yourself included, I did have rituxamab, has that made a diffrence!! Anyway still keeping well although I still get quite tired! Mandy j